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knowtheglow.org |
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Here’s What's New at KTG!
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Greetings, KTG Community!
As we step into a brand new year filled with opportunity, it brings us great joy to share the latest updates from our community.
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University Updates
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Rare Disease Day |
Notre Dame celebrated Rare Disease Day on February 29th by illuminating the Hesburgh Library's Word of Life Mural as part of their campus-wide event, "LightUpForRare," attended by the Rare Disease Club.
We are happy to highlight their efforts to bring awareness to rare diseases and send our congratulations to all on another successful event!
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READ MORE
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KnowTheGlow MCU Student Chapter |
Upcoming events of the organization have been looking forward to attaining our purpose and goal. On May 27th we are having our “Glow Detectives Seminar: Understanding the Glow for Visual and Ocular Wellness” to be held at the Helix Auditorium of Manila Central University.
After our Glow Detectives seminar, a joint collaboration of the KTG and SVOSH – MCU Chapter for the “Eye Volunteer” seminar will take place on the same date and venue of our Glow Detectives seminar. This will be a hybrid seminar as we are going to invite students from Nicaragua and Jairo Mercado as one of our speakers. We will be sending our formal invite to Megan to be one of our speakers to talk about Know the Glow to inspire our students about the advocacy of Know the Glow. See full activities list of the MCU student chapter below.
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CLICK HERE
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International Student Chapter |
Announcing our newest international student chapter! KnowTheGlow is delighted to announce the St. Andrew’s College of Nursing (SACON) KTG Chapter in Pune, India! SACON is our first Nursing Student chapter! Special thanks to Larry Wagh, our India Ambassador, for bringing us together! We also thank Jen Vinola, our MCU Chapter Faculty Advisor, who is working with her students in the Philippines to be an example and help guide the SACON chapter as they begin their program in India! Read more about the students and see the link to their student facebook page.
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CLICK HERE
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Nigeria Campaign |
The results from our awareness campaign in Nigeria are in!
Thank you for sharing our posts far and wide. Reaching more than 6 million people in Nigeria with nearly 24 million impressions! WOW! This achievement represents a milestone in campaign outreach, and we are confident that it will result in the preservation of vision for numerous children across the nation in the years to come.
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Current Campaign Running in Brazil |
After our successes in Nigeria, Tanzania, and Kenya we've crossed the ocean to begin our awareness campaign in Brazil! With amazing team member physicians including Dr. Luis Teixeira and Dr. Viviane Lanzelotte, we know it will be another tremendous campaign! Preview the campaign below.
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CLICK HERE
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This Year's Collaboration |
Through this year’s collaboration with KnowTheGlow, Tiago Leifert and Team Brazil have partnered with KTG creating images and messaging that are co-branded with the “De olho nos olhinhos” logo and which are already reaching the national audience of Brazil with messages in English and Portuguese.
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Up Next… |
Korea and Switzerland: We look forward to sending updates soon on these campaigns! Our Korean campaign has been spearheaded by three ND volunteers of Korean descent working and translating materials in advance of the campaign!
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Glow Survivors Who Inspire Us
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Aduduh Faeren Jay's Story |
Aduduh’s journey reflects not only the personal anguish of living with a preventable eye condition but also the systemic challenges and misconceptions that permeate communities like his own.
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READ MORE
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Tiago and Daiana Leifert's Story |
Tiago shared the story of his daughter Lua’s battle with this rare eye cancer and their ever increasing efforts to spread awareness.
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READ MORE
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Bella’s Glow Story |
I never even picked up on the Glow until after she was diagnosed and I went back to look through pictures. It’s so important to look at your flash photos and to know about this to save children’s lives!
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READ MORE
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Meet Dr. Ibrahim and Dr. Abdullahi |
At Aminu Kano Teaching Hospital in Nigeria, Dr. Ibrahim and Dr. Abdullahi exemplify unwavering dedication in delivering specialized care. Dr. Ibrahim specializes in pediatric ophthalmology, where she skillfully treats cases of Retinoblastoma, while Dr. Abdullahi expertly manages cases involving glaucoma and Retinoblastoma.
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READ MORE
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Meet Dr. Linda Lawrence and Dr. Ian Murdoch |
In the pursuit of eliminating preventable blindness in children, the resounding theme of collaboration emerges as the most promising path toward success. Dr. Linda Lawrence and Dr. Ian Murdoch stand as beacons of hope, demonstrating the transformative power of collective action in pediatric ophthalmology.
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READ MORE
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Meet Dr. Okechukwu Udeala and Dr. Otih Gabriel.C |
Dr. Okechukwu Udeala and Dr. Otih Gabriel.C. visited Nne Enyemaka Parish Umuaka, Njaba Local Government Area, Imo State, Nigeria. They were received by the Reverend Father in-charge, where they stated the reason for their visit: "Know The Glow Awareness Campaign in Nigeria."
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READ MORE
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Meet Carla Soto Vargas
Know the Glow Chile Ambassador
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KTG is excited to announce the wonderful addition of adult RB survivor, Carla Soto Vargas, who is leading the charge for awareness in Chile on behalf of KTG! Watch for updates on the families and other doctors and NGOs she’s already introducing us to there!
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READ MORE
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Ocular Oncology Symposium Athens, Greece May 2024
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We are delighted to announce that Helene Dameris, Director of Global Outreach for KnowTheGlow, will be attending the upcoming combined conference of the 1st Ocular Oncology Symposium and the 10th Annual European Retinoblastoma Meeting Group. Scheduled to take place from May 30th to June 1st, 2024, in Athens, Greece, this conference promises to be an exceptional gathering of distinguished worldwide Ocular Oncologists specialists. Helene's presence underscores KnowTheGlow's commitment to advancing research and collaboration within the ocular oncology community. We look forward to her contributions and the enriching discussions
that will undoubtedly unfold at this prestigious conference in the vibrant city of Athens.
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International Agency for the Prevention of Blindness (IAPB) Conference in Mexico City June 2024 |
Megan Webber, Helene Dameris and our new partnership liaison, Caitlin Villante, are looking forward to attending the IAPB conference in Mexico City this June! At the conference we hope to meet with other IAPB members from around the world to discuss issues surrounding awareness of blinding conditions and how we can work together to reach rural communities.
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World Congress of Pediatric Ophthalmology and Strabismus Conference
July 2024 |
KTG is honored to have Sandra Staffieri representing KTG at the Kuala Lumpur WSPOS Conference in July! She will be presenting on how digital technology is enhancing awareness and early diagnosis of childhood eye disease.
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A special shoutout to Marissa Gonzales and Abby White from We C Hope as they work to provide ArcLight Scopes to five countries within Sub-Saharan Africa. KTG is honored to work alongside We C Hope and ArcLight to find innovative ways to support the doctors and communities in Africa. Moved by the presentation in Mombasa given by Dr. Andrew Blaikie, Marissa personally committed to providing Arclights to five nations and they are now arriving. Nigeria and Uganda have Arclights in hand and more will be arriving soon! We will look forward to sharing more about how this unique collaboration will lead to saved sight globally!
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We're thrilled by the progress we've made and the amazing support from all of our KTG community and international partners. Doctors, families, and individuals keep inspiring us with their strong dedication to our cause.
Your donations mean the WORLD, literally! With your help we are able to create impactful messaging, imagery, and videos.
Donate Now: Please consider making a donation to support KTG's mission. We do not sell anything at KTG, and every contribution goes directly to the communities we aim to serve.
Get Involved: If you're interested in volunteering, representing your country, or have ideas to share with KTG, please reach out to us at info@knowtheglow.org.
Together, we are igniting change & spreading awareness.
Thank you for being a vital part of the Know The Glow movement.
With gratitude,
KnowTheGlow Team
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Share! Know The Glow wants to share stories about children’s vision specifically relating to “the Glow.” If you have a story to share, please reach out to us at info@knowtheglow.org
Give! Would you like to help Know the Glow spread awareness of glow-related diseases? Click here to help Know the Glow continue spreading the message!
Join! Want to be part of our community? Join the Facebook “Know the Glow Community” page here to connect with other parents and KTG experts!
Subscribe! Follow the link here to subscribe to Know the Glow and ensure you keep getting our updates!
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