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Know the Glow works globally to eliminate preventable childhood blindness through early detection and treatment of glow related conditions. |
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Our Global Impact Is Skyrocketing in 2025! |
KnowTheGlow is igniting awareness, driving change, and reaching more families than ever before! Our global outreach is expanding dramatically, shining a powerful spotlight on the early detection and prevention of childhood blindness.
In this edition, we’re thrilled to showcase the incredible momentum behind our mission—from bold new partnerships and energized ambassador programs to awareness campaigns educating communities worldwide. This expansion is due in large part to the efforts of our newly appointed Program Manager for Africa, Ruth Ngaruiya, whose dedication and strategic outreach have significantly strengthened our connections across Sub-Saharan Africa. You’ll also meet some of the passionate changemakers dedicated to our collective goal of eradicating preventable childhood blindness.
Thank you for being a vital part of KnowTheGlow. Together, we’re transforming lives and protecting the vision of children across the globe!
Know The Glow Team |
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Coloring the World with Awareness: Explore Our Global Impact Map! |
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Our mission is lighting up the globe—and now you can see it in action! As KnowTheGlow’s outreach explodes across continents, we’ve created a dynamic, interactive map on our website that showcases the 21 countries where we've launched powerful awareness campaigns. |
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India Campaign Results and New Language Translations |
We continue to maintain a strong presence in India, where our mini campaign delivered impressive results. Seven additional language translations were included for this campaign and the campaign dates were targeted to cover the dates of the ISOO Conference which took place in Goa, India. |
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Uganda Results |
The Uganda Campaign ran from January 15 to March 15, 2025, and achieved remarkable results—over 113,000 clicks, a reach of 1.3 million, and more than 8.2 million impressions. Visit our Uganda page for more images and articles highlighting the patients, doctors, NGOs, and KTG partners who helped make the campaign possible. |
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Africa Updates from KTG Program Manager, Ruth |
As KTG’s Africa Program Manager, Ruth Ngaruiya is driving powerful change across the continent. With year-round campaigns expanding fast, her leadership is fueling impactful outreach and life-saving awareness. Check out her update from February. |
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Samuel’s Glow Story |
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Samuel was a very healthy little boy, never having as much as an ear infection for the first three years of his life. But one day right before Christmas of 2022, his father and I began to notice that Sam’s left eyelid seemed to be drooping. It was very slight at first, but clearly there. Within a few days, it became quite noticeable in the Santa photos we took of him. |
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GLOW-Bal Updates 🌎
University, Conferences & Partnerships |
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KTG International |
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Notre Dame Celebrated Rare Disease Day: Thanks to the dedication of Know The Glow Notre Dame student interns and under the guidance of Professor Calhoun, luminaries were submitted on behalf of children featured on our KTG social media pages over the past year in support of Rare Disease Day on February 28th at the University of Notre Dame.
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University of Notre Dame Pilot Program: We are also excited to share our collaboration with Professor Barb Calhoun’s Rare Disease Advocacy Immersion course at the University of Notre Dame. This initiative is dedicated to preparing the next generation of patient advocates through advocacy, outreach, and education.
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Marissa Gonzalez: As part of the Rare Disease Advocacy Immersion course, students had the incredible opportunity to hear from Marissa D. Gonzalez, President of World Eye Cancer Hope USA, who shared her powerful journey as a bilateral retinoblastoma survivor.
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2030 IN SIGHT LIVE – Nepal: Global leaders in eye health will gather in Kathmandu for 2030 IN SIGHT LIVE, a powerful event focused on accelerating progress toward universal eye care. In alignment with this momentum, KnowTheGlow is currently conducting a dedicated awareness campaign in Nepal and Tibet to help spotlight early detection of childhood blindness in the region.
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Celebrating Shelby Perry and EYEHESIVE: Shelby Perry just marked three years since launching EYEHESIVE and four years on her journey of resilience. From a personal story to a global movement, she’s built a powerful community—and now unveils a brand-new EYEHESIVE website to take her mission even further. Visit their website https://eyehesive.com/
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Inspiring News đź–¤
Advocates & Doctors who inspire us
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Introducing Molly Pyott & the David and Molly Pyott Foundation |
Megan Webber, Co-Founder of KnowTheGlow, recently connected with Molly Pyott of the David and Molly Pyott Foundation to discuss their shared mission to combat preventable blindness in sub-Saharan Africa. |
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Meet Team Uganda |
In a recent meeting, KnowTheGlow’s Co-Founder, Megan Webber, and Global Outreach Director, Helene Dameris, spoke with Ugandan eye health professionals led by Dr. Innocent Ayesiga of Eye Health Africa. The team has been conducting eye health camps since 2017, raising awareness about Retinoblastoma (RB) and training local professionals. Despite challenges like limited resources and a shortage of ophthalmologists, they’re making strides, particularly in rural areas. |
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Introducing Moses Echodu & Dr. Derrick Bary |
KnowTheGlow recently met with Moses Echodu, Executive Director of the Uganda Child Cancer Foundation (UCCF), and Dr. Derrick Bary Abila, Research Program Lead, to discuss childhood cancer care in Uganda. UCCF is dedicated to early detection through education and outreach programs, particularly targeting high school students and mothers. |
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Introducing Bukenya Martin, Founder of Spero Child International |
Bukenya Martin leads Spero Child International, focusing on child welfare and eye health awareness in Uganda. His organization raises awareness about Retinoblastoma (Rb) and promotes early diagnosis, working with local communities and health facilities. |
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Introducing Abas Hassan Hussein: Executive Director of Somali Social Welfare Agency |
At KnowTheGlow, we are inspired by the impactful work of organizations like the Somali Social Welfare Agency (SSWA). Founded in 2022, SSWA is dedicated to supporting vulnerable communities in Somalia, focusing on education, child protection, and healthcare. |
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Harvard’s Collaboration with Ugandan Partners Strengthens Eye Health |
The partnership focuses on complex eye conditions, providing training, surgical support, and vital equipment.KnowTheGlow is proud to highlight this impactful work and inspire similar global initiatives. |
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Team Updates 🙌
Team Members, Ambassadors, and Doctors |
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Introducing Pemije Emmanuel Gadimoh: From Volunteer to Visionary, meet our newest Global Student Chapter Ambassador, Pemije Emmanuel Gadimoh. Join us in celebrating Pemije’s journey and the powerful impact he’s making as a KTG Ambassador! Click here to learn more.
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Championing Change in India: Meet Our Newest KTG Ambassador, Dr. Priti Pandey: As a KTG Ambassador, she brings vision, compassion, and powerful grassroots action to our global mission. We’re proud to have Dr. Priti Pandey as we continue to expand across India and beyond! Click here to learn more.
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Meet Randi Lambrecht, KTG USA Ambassador: Randi is helping us light up North America as a KnowTheGlow Ambassador—one story, one family, one Glow at a time. Click here to learn more.
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Would you like to help Know the Glow spread awareness of glow-related diseases? Click SUPPORT to help Know the Glow continue spreading the message! |
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Support Know The Glow |
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