|
|
|
Know the Glow works globally to eliminate preventable childhood blindness through early detection and treatment of glow related conditions. |
|
|
 |
A New Season. A Fresh Start.
A Chance to SEE What Matters. |
|
Autumn is a season filled with special moments, from school pictures and sporting events to fall celebrations and family gatherings. At KnowTheGlow, we know that sometimes a photograph can reveal more than a memory. The Glow can be an early warning sign of serious childhood eye disease, and recognizing it early can make a life-changing difference.
This fall, we continue to turn awareness into action around the world, connecting families, physicians, advocates, students, and organizations with one shared purpose: helping more people recognize the Glow and understand when it is time to seek an eye examination.
Because seasons change quickly. A child’s vision can, too. And knowing what to look for can make all the difference.
As we continue through this exciting season at KnowTheGlow, we invite you to keep looking, keep sharing, and keep helping us bring early detection into focus for families everywhere.
With heartfelt thanks,
KnowTheGlow Team |
|
|
 |
Thank You for Going Gold With Us! |
|
Throughout September, our KnowTheGlow community came together to help shine a light on Childhood Cancer Awareness Month and the importance of recognizing the early signs of retinoblastoma.
To every family, Ambassador, Student Chapter, partner, physician, organization, and supporter who wore gold, shared our graphics, told a story, posted on social media, or simply started a conversation about The Glow, thank you. Every share helped carry this important message a little further and gave another family the opportunity to learn what The Glow could mean.
Gold September may be over, but the awareness you helped create continues. Together, we are helping more families know The Glow and recognize when it is time to take action.
Click here to look back at our Gold September campaign. |
| Read More |
|
|
|
|
|
|
 |
World Sight Day 2026
Spreading the GLOW Around the World! |
|
On October 8th, we celebrated World Sight Day, joining voices around the globe to raise awareness about the importance of early detection and protecting children's sight!
A heartfelt thank you to everyone who helped spread the GLOW by sharing our awareness images and resources! Your support helped bring this important, potentially sight-saving message to families and communities around the world.
A special thank you to our MCU Student Chapter for joining the celebration and creating a wonderful World Sight Day video to help spread awareness and inspire others to recognize The Glow!
Let's keep the momentum going! Visit our World Sight Day 2026 page to explore and continue to share our awareness materials. Together, we can make a difference, one GLOW at a time! |
|
|
|
A Wonderful Evening at Jenni Kayne |
|
We were thrilled to return to Jenni Kayne Brentwood for another special Sip & Shop benefiting KnowTheGlow. It was a wonderful evening filled with friendship, generosity, and support for our mission to bring early detection awareness to more families around the world.
A heartfelt thank you to Jenni Kayne, our incredibly generous donors, and everyone who joined us and supported the event. Your generosity helps us continue expanding The Glow awareness and making a meaningful difference for children and families worldwide. Click here to read more. |
|
|
|
One World Retinoblastoma World Conference 2026 |
|
This September, KnowTheGlow was honored to be part of the One Rb World Conference in San Antonio, Texas, bringing together families, survivors, physicians, researchers, advocates, and organizations from around the world. KnowTheGlow Co-Founder Megan Webber, Global Outreach Director Helene Dameris, and KTG USA Ambassador Jennifer Villamar represented KnowTheGlow, with Megan and Jennifer presenting and sharing their perspectives with the global retinoblastoma community.
A heartfelt thank you to Marissa Gonzales and the entire We C Hope team for organizing such an inspiring conference and creating a meaningful opportunity to connect, learn, and strengthen our shared commitment to families affected by retinoblastoma.
Click the link to read more about our One Rb World experience. |
|
|
|
Country Campaign Updates 🌎 |
|
|
Lebanon Campaign
July 15 - August 31 |
|
This summer, KnowTheGlow brought Glow awareness campaign to Lebanon, providing families and communities with educational resources in both Arabic and English. Through locally accessible materials and growing connections within the country, we are helping more families recognize The Glow and understand the importance of early detection. |
|
|
| Explore KnowTheGlow Lebanon |
|
|
|
Greece Campaign
September 1 - October 15 |
|
KnowTheGlow is proud to bring our message of early detection to Greece, reaching new families with resources designed to help them spot The Glow in everyday photographs. With materials available in Greek and English, this campaign is another important step toward ensuring that more parents know what to look for and when to take action. |
|
|
| Explore KnowTheGlow Greece |
|
|
|
Spreading Awarenss in the Democratic Republic of the Congo! |
|
We are excited to announce the launch of our latest GLOWbal Awareness Campaign in the Democratic Republic of the Congo (DRC) on October 15th! This campaign marks another exciting step in expanding KnowTheGlow’s global reach, raising awareness about the importance of recognizing the Glow and the early detection of childhood eye diseases. Through locally relevant awareness materials, we hope to reach more families and communities with this potentially sight-saving message! |
|
|
| Explore KnowTheGlow DRC |
|
|
|
|
|
Samuel's Glow Story:
A Mother's Determination and Hope
|
|
When Ana Fátima noticed an unusual white glow in her baby Samuel's eye at just two months old, her instincts told her something wasn't right. Despite initially being reassured that it was normal, Ana continued searching for answers, ultimately leading to Samuel's diagnosis of retinoblastoma in both eyes. Thanks to her persistence and early medical intervention, Samuel began receiving treatment and continues to face his journey with the joyful spirit of a happy little boy. Today, Ana shares their story to encourage parents everywhere to trust their instincts, recognize the Glow, and understand the life-saving importance of early detection. Click here to read more about Samuel's journey. |
|
|
|
|
|
Glow Story Videos:
Sharing Strength, Awareness, and Hope |
|
Each Glow Story offers a powerful reminder of why awareness matters. Through these short videos, families share their journeys from first noticing The Glow through diagnosis, treatment, and where they are today, helping other parents recognize a sign they may otherwise overlook.
In each newsletter, we are honored to spotlight one of these remarkable families and share their story with you.
Have a Glow Story of your own? We would be honored to help you share it.
|
|
|
| Share your story |
|
|
|
|
|
|
|
GLOW-Bal Updates 🌎
University, Conferences & Partnerships |
|
|
|
Partner Spotlight: Early Eye Screening in Madagascar
CBM Global is helping bring early childhood eye screening closer to communities in Madagascar. Through the use of the portable Arclight device, health workers have been trained to screen young children and identify potential eye conditions earlier. The programme has already reached thousands of children, demonstrating the value of bringing screening into local health services and communities. Click the link to read more.
KTG IN ACTION
Community Outreach in Lagos, Nigeria
Our volunteer, Dr. Charles Laizer Doyin, recently led a two-day community eye health outreach in Agiliti, Lagos, reaching 165 people, including 25 children. Alongside eye screenings, Dr. Charles raised awareness about childhood eye conditions and the importance of recognizing them early. The outreach helped bring eye health education and services closer to the community. Click the link to read more about Dr. Charles’ outreach in Lagos:
New GLOWbal Partnerships
Our GLOWbal community continues to grow! We are excited to welcomeOOG in OOG, Closer 2 Care, Holly’s Hope, Spero Child International, ProVision Sight Africa and Hôpital Provincial Général de Référence de Bukavu (HPGRB) as new KnowTheGlow partners. Together, we are expanding our reach, building stronger connections, and bringing greater awareness to the importance of early detection and protecting children’s sight around the world. We are so grateful to have these incredible organizations joining us in our mission! Click here to see all of KnowTheGlow’s partners.
|
 |
|
|
|
|
Our Student Chapters in Action🌎
|
|
|
|
At the University of Notre Dame, students provided awareness on campus in honor of World Sight Day and the University’s Patient Advocacy Summit in October. A big thank you to our dedicated students for helping spread our mission and to everyone who stopped by to show their support! Click here to read more.
Our KnowTheGlow Student Chapters are helping bring awareness about childhood eye health directly to communities. We are excited to welcome three new universities: The University of Nairobi and Masinde Muliro University of Science and Technology in Kenya, Bingham University and Gregory University in Nigeria and Honu University in Democratic Republic of Congo.
We look forward to working with students at each university as they build awareness, engage their communities, and help share the message that early recognition can make a difference. Click the link to learn more about our Student Chapters.
At the University of Notre Dame, students provided awareness on campus in honor of World Sight Day and the University’s Patient Advocacy Summit in October. |
|
|
|
|
|
|
Inspiring News 🖤
Advocates & Doctors who inspire us
|
|
|
|
|
|
|
Professor Gita Naidu: A Voice for Early Detection |
|
Professor Gita Naidu has dedicated more than two decades to improving childhood cancer care in South Africa. Her work has helped strengthen early recognition of childhood cancer, including retinoblastoma, and she continues to advocate for better awareness, early diagnosis, and access to care. Her commitment to helping families recognize warning signs like The Glow closely reflects the mission of KnowTheGlow. |
|
| Read more |
|
|
|
|
|
|
Team Updates 🌎
Team Members, Ambassadors, and Doctors |
|
|
|
Welcoming Our Newest GLOWbal Ambassadors!
We are thrilled to welcome five incredible new Ambassadors to the KnowTheGlow family! Each brings a personal journey, a passion for raising awareness, and a commitment to helping families recognize the Glow and understand the importance of early detection.
Robyn Wakefield – Australia Ambassador: Inspired by her son Emmett’s retinoblastoma journey, Robyn is the founder of Closer2Care, an initiative advocating for improved access to pediatric oncology care for children and families in Canberra and surrounding communities.
Terra Rouse – USA Ambassador: A Kentucky mother of two and founder of Look Into Their Eyes, Terra turned her son Hayden’s retinoblastoma journey into a mission to educate parents about childhood eye health and the importance of recognizing early warning signs.
Erin Parker – Canada Ambassador: Inspired by her son Felix’s retinoblastoma journey, which began with the discovery of the Glow at just two years old, Erin is passionate about helping other families recognize the warning signs and understand the life-saving importance of early detection.
Kristen Draime – USA Ambassador: After noticing the Glow in her daughter Miley’s eye, Kristen’s instincts led her to seek medical attention, resulting in a retinoblastoma diagnosis in November 2025. With a background in social work and a passion for advocacy, Kristen is dedicated to sharing Miley’s journey to help other families recognize the warning signs and understand the importance of early detection.
Chelsea Vito – Canada Ambassador: Inspired by her son Dominic’s bilateral retinoblastoma diagnosis in April 2025, discovered during a routine eye examination despite no visible Glow or warning signs, Chelsea is passionate about raising awareness of early detection and pediatric eye health. As co-founder of the West Coast Retinoblastoma Support Group alongside fellow KTG Ambassador Erin Parker, Chelsea is dedicated to connecting families, providing support, and helping others navigate the challenges of a retinoblastoma diagnosis.
We are incredibly grateful to have Robyn, Terra, Erin, Kristen and Chelsea joining our growing GLOWbal Ambassador community! Their voices, experiences, and dedication will help us reach even more families around the world. We look forward to sharing more of their inspiring stories!
|
|
|
|
|
|
|
|
|
|
Would you like to help Know the Glow spread awareness of glow-related diseases?
Click SUPPORT to help Know the Glow continue spreading the message! |
|
|
| Support Know The Glow |
|
|
 |
|
|
|
|
